GPPG: The beginning

The GPPG aims to inspire meaningful dialogue and progress towards truly patient-centric practices

 

Patients are the driving force behind every research breakthrough, every advancement, and every cure.

Understanding experiences, listening to the voices, and incorporating learnings from those with lived experience of a health condition should be intrinsic throughout the lifecycle of a medicine or product. From identifying research targets, designing and implementing clinical trials and study reporting, through regulatory milestones, commercialisation, healthcare professional and public communication, patient support and beyond. This is not a new story, but it is still worth telling. It is not a story only for a few, but for all.

Since 2023, Precision AQ has published a yearly Good Patient Partnership Guide (GPPG) where we undertake an in-depth listening exercise with a panel of patient groups, advocates, and industry partners to explore annual trends and identify new insights on collaborative working in the patient space.

The GPPG aims to inspire meaningful dialogue and progress towards truly patient-centric practices, ensuring the patient voice is heard, valued, and acted upon to support the journey towards enabling access to life-changing medicine for all. To achieve this, we need to set a higher standard.

The GPPG recognises great work and shares concise insights and tangible recommendations for industry professionals striving to initiate or improve good patient engagement practices.

GPPG: The story so far

The first and second editions delved into the vital partnerships between industry and patient organisations and offered inspiration and practical tips on enhancing patient-centric collaborations and practices.

The third edition explored challenges associated with the understanding and deliver of health literary to enhance accountability.

This year’s GPPG discusses patient journey mapping as a partnership‑led insight discipline.

Our panel of experts examined examined what ‘good’ looks like in practice: the practicalities of partnering, how to embed diversity, equity and representation inclusion by design, how to capture the multi‑dimensional reality of living with a condition (including carers and family), and where artificial intelligence (AI) can responsibly support – but never replace – meaningful collaboration.

Spark ideas, be part of the conversation and be inspired to advocate for the principles in the Guide:

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“Patient journey mapping only has value when it is built with people, not about them. This year’s Guide shows how meaningful partnership is what turns lived experience into credible, equitable insight and empowers better decision making.”

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Key ‘dos and don’ts’ when developing comprehensive patient journey maps 

Do:

  • Embed partnership early – involve patients and patient organisations from the outset, not as a final validation step.

  • Do landscape mapping first – understand sub‑groups, bias and gaps before collecting insights.

  • Design for representation – go beyond the loudest voices and work with multiple partners where needed.

  • Focus on moments that matter – prioritise touchpoints with the greatest impact on experience and outcomes.

  • Map the full lived experience – include emotional, practical and social realities, not just the clinical pathway.

  • Close the loop – share outputs back, explain next steps and be clear about impact.

Don't:

  • Don’t treat journey mapping as a tick‑box exercise or create outputs that aren’t used.

  • Don’t assume one map represents everyone or present a single pathway as universal.

  • Don’t rely on the ‘usual volunteers’ – this risks reinforcing bias.

  • Don’t skip landscape mapping for speed or convenience.

  • Don’t overburden partners operationally with complex contracting or late requests.

  • Don’t use AI as a substitute for lived experience or without human verification.

Why should I care about patient engagement/the patient perspective – why should it be important to me?

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We put the patient at the centre of everything we do because behind every treatment is a person whose life could be changed. By understanding and always thinking about the patient experience and the patient journey, you create brand narratives that are more authentic, emotional and credible – the kind that actually move people. 

Why should I read the GPPG – what’s in it for me?

You get out, what you put in. Never has this been truer than for patient insight, specifically Patient Journey Mapping - the subject tackled by this year's GPPG. Marketing teams and launch leads should be challenging the depth and breadth of the patient experience that drives their decision-making and asking if they could and should do more to partner in this area. This year's GPPG is a great starting point for that debate.

Why should I care about patient engagement/the patient perspective – why should it be important to me?

tab--icon-wide-med-edInvolving patients helps ensure that educational content is grounded in lived experience, not just clinical data. When physicians hear the patient voice, it connects them with the material and becomes more deeply embedded in their thoughts and actions. Educating HCPS on how to engage with patients improves communication and ultimately treatment outcomes.

Why should I read the GPPG – what’s in it for me?

This edition of the Good Patient Partnership Guide (GPPG), with its focus on best practice in patient journey mapping, is a must read for medical affairs professionals. Understanding the patient journey enhances scientific credibility and strengthens relationships with healthcare professionals. This edition of GPPG gives people working in medical affairs an invaluable opportunity to learn, reflect and possibly even improve their own current practice.

Why should I care about patient engagement/the patient perspective – why should it be important to me?

tab--icon-wide-patient-engagementGreat work is being done by the pharmaceutical industry, patient opinion leaders, individuals with lived experience and the groups representing them. But is it enough – is it truly having the impact it set out to achieve? Could the harnessing of lived experience from the outset of all projects elevate efforts and outputs to a new level? Could it add value to ensure a meaningful difference is made for patients, and for a company's bottom line which, after all, needs to be healthy to enable ongoing investment into research and development and continued drug discovery to improve patient outcomes? Yes, so let’s engage well with the patient community.

Why should I read the GPPG – what’s in it for me?

You will uncover insights from patient groups, patient advocates and pharmaceutical and medical device expert professionals along with inspirational ideas and case studies to enhance your approach to journey mapping to ensure whatever valuable work you are doing goes from ‘great’ to ‘excellent’, is rooted in lived experience, and goes beyond the clinical pathway to include emotional, practical and social realities.

Why should I care about patient engagement/the patient perspective – why should it be important to me?

tab--icon-wide-prThe key to success in healthcare communications is knowing your audience; knowing what they want communicated to them and how they want to be communicated with. The GPPG provides all-important insight into the perspective of the patient community, and those partnering with it, enabling you to create communication assets that will really cut through the noise.

Why should I read the GPPG – what’s in it for me?

You should read GPPG because it is grounded in insights from the patient community on how to improve patient journey mapping through a partnership approach. This will enable healthcare organisations to create communication messages that reflect the lived patient experience including diverse patient communities and under-represented voices. This results in richer storytelling for disease awareness, thought leadership and stakeholder engagement.

Why should I care about patient engagement/the patient perspective – why should it be important to me?

tab--icon-wide-l-and-dWe are often asked how we are going to simplify scientific content in our training and education materials, whether it is for HCPs, sales reps or patients. It supports everyone to bring a patient-first focus to training materials. By providing content that is easier to understand, HCPs are prompted to use simpler language and visual approaches in their discussions with patients.

Why should I read the GPPG – what’s in it for me?

From an L&D perspective, partnership‑led patient journey mapping is not just a methodology but a capability that must be intentionally built across teams. Comprehensive understanding of lived experience enables us to embed this into training to ensure that learning becomes the bridge between insight and real‑world impact.

Why should I care about patient journey mapping – why should it be important to me?

tab--icon-wide-market-accessPatient journey mapping matters in Market Access because it turns “unmet need” from a generic claim into a clear, evidence-led explanation of where patients get delayed, excluded, or drop off (diagnosis, referral, testing, prior authorisation, affordability, adherence/persistence), and what that costs the system in avoidable outcomes and resource use. This enables you to build a more payer-relevant value story, target HEOR/RWE to the touchpoints that actually drive utilisation and inequity (not just the guideline pathway), and align cross-functional teams around the real barriers to uptake and outcomes rather than assumptions.

Why should I read the GPPG – what’s in it for me?

You should read the GPPG because it gives you a practical “quality standard” for how to do journey mapping with patient communities in a way that is credible and usable. It frames this as guidance for life sciences teams including Market Access, offering principles and practical recommendations to make engagement more repeatable, equitable, and actionable (which ultimately makes your access narrative and supporting insight more defensible).

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